Purple Day got its start in 2008 when a then nine-year-old girl in Nova Scotia, Cassidy Megan, wanted to do something to show people with epilepsy that they are not alone. It has grown each year, and in Canada March 26 is even officially proclaimed Purple Day, since the passage of the Purple Day Act.
I used to think that there were just two types of epilepsy, Grand Mal and Petit Mal. I have learned differently. There are many, many variants of this disease, and it is not always easy to pinpoint just what is causing the seizures, nor how to get them under control. Nor are seizures all alike. My understanding of this condition has grown as I have watched the journey of my online friend Bethany, her husband, her now-six-year-old son Renn (who was diagnosed with Complex Partial Epilepsy one year ago, on March 23, 2012) and his little brother. You can follow their journey at Bethany’s blog, The Brain of a Jedi.
If you want to show your support for kids like Cassidy, who started Purple Day, and Renn, who is dealing with some awfully scary stuff in an incredibly brave manner, you can wear purple tomorrow — and tell people why you’re doing so. You can educate yourself about the condition. And since I didn’t find a lot of current books for kids on the topic, if you’re a writer, maybe you can write a book that will help kids like these feel a little less alone.
Here’s to a world of purple people tomorrow!